What Can Be Learned from Lymphedema Diagnosis?

The Lymphoscintigraphy machine

Many health practitioners are still figuring out what Lymphedema is, let alone what to do about it. On that patient side, actual Lymphedema diagnosis can be a costly endeavor, an unnecessary formality, a step toward surgery, or a source of affirmation. For me, like most things, it became a matter of knowing the rules so I’d know how and when I could break them. Before I get started in telling you what I did and what resulted, a quick disclaimer: I’m not a health professional, nor am I the most knowledgeable when it comes to Lymphedema (LE) diagnosis, but when […]

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Loving Someone With Lymphedema

Loving Someone With Lymphedema - Pura Vida Sometimes

As many as 200 million people worldwide suffer from Lymphedema, but diagnosis can often leave patients feeling alone and stranded. If you love someone with Lymphedema (LE), there are a few regular habits you can establish to help them feel comfortable, understood, and loved. LE is a dysfunction of the Lymphatic System – the body’s network of filters that helps the Circulatory System clear bacteria, infection, and by-products of blood circulation. Lymphedema can be primary (genetic) or secondary, as the result of trauma or damage to lymph nodes, often as a result of cancer treatment. Fluid back-up in the limbs makes […]

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Lymphie Legs: Compression & Summer Style

The scorching summer heat and oppressive humidity can make the life of a lymphie challenging, but there are a few physique-appropriate choices in light, breathable fabrics that will carry you through the season in lymphie summer style. I was recently diagnosed with primary bilateral Lymphedema, and had to kick my compression game into overdrive with in the sweltering Arizona summer – sure, it’s a dry heat until monsoons (about now). As far as I can tell, there are two critical factors in looking good at all times: knowing your own style and wearing your look with confidence. Wear something you love […]

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